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Newly Diagnosed? Here’s What I Wish I’d Known in Month One

Claymation split image of a sad bearded man with gluten food, and a happy version holding gluten-free food and giving a thumbs-up outdoors.

Especially during Coeliac Awareness Month — because you’re not alone in this.

Being told you have coeliac disease can feel like your world’s been flipped upside down — because, well, it has. This post is for you — whether you’re freshly diagnosed, halfway through testing, or sat Googling “what even is gluten?” while eating a suspiciously chewy biscuit.

This month is Coeliac Awareness Month — so let’s talk openly, honestly, and with just a dash of dry humour about what it’s really like in those first few weeks.


1. The Grief Is Real — And That’s Okay

When someone first told me I had coeliac disease, I didn’t expect to feel sad. Or angry. Or irrationally nostalgic for my local bakery’s sausage rolls. But grief is a completely normal response.

You’re not just cutting out gluten — you’re saying goodbye to convenience, spontaneity, and the ability to mindlessly eat party food without reading a label like it’s a legal contract.

You might even feel silly for being so emotional. Don’t. This isn’t overdramatic — it’s part of healing.

Note to Past Me (and You): You’re not “being fussy” or “overreacting.” You’re adapting. That takes time, and sometimes, tissues.

Also, if you happen to cry in the supermarket bread aisle — you are not the first, and you won’t be the last.


2. Hidden Gluten Traps Are Everywhere — But You’ll Learn to Spot Them

No one warns you about the sneaky places gluten hides:

  • Soy sauce (yep, it’s got wheat — how rude)
  • “Natural flavours” (mysterious and untrustworthy)
  • Gravy granules (Sunday roast betrayal)
  • Pre-grated cheese (sometimes dusted with wheat starch — WHY?!)
  • That one pub that swears their chips are safe (spoiler: they’re fried in the same oil as onion rings)

At first, you’ll feel like a detective in a bad Netflix series: CSI: Cross-Contamination.

Note to Past Me (and You): You’ll soon develop a sixth sense for dodgy labels, and start side-eyeing pub chips like a suspicious detective. Trust it — it’s earned.


3. If You Get Glutened, It’s Not Your Fault

In the early days, I thought I had to be perfect. Like one rogue breadcrumb meant I’d failed some invisible gluten-free exam.

Let me tell you now: you will probably get glutened at some point. Maybe by a well-meaning mate who says, “It’s fine, it’s only a bit battered.” Maybe by a product that’s labelled ‘free from’ but made in a mayhem-filled factory. Maybe by your own brain freeze when ordering food in a loud pub with low lighting and too many chips on the menu.

It happens. It sucks. And it’s not your fault.

Note to Past Me (and You): You’re not failing. You’re learning. Be kind to yourself — and maybe keep a spare pair of stretchy trousers on hand for emergency bloating.


4. Reading Labels Feels Like an Emotional Rollercoaster

Welcome to your new full-time job: decoding ingredient lists.

It starts out like a tense game of Minesweeper:

  • “Wait — does barley malt extract count?!” (Yes. Sadly.)
  • “Why does this need wheat starch? It’s hummus!”
  • “Why is the gluten-free version twice the price and half the size?!”

You’ll go from confused to outraged to oddly proud in one trip round Tesco.

Note to Past Me (and You): You will cry at the price of gluten-free bread. And then you’ll discover that some gluten-free custard creams are actually better than the original. Swings and roundabouts.


5. You Don’t Have to Do This Alone

Whether you’re the only coeliac in your family or surrounded by people who mean well but keep asking if you can “cheat just once,” this journey can feel isolating.

But you’re not on your own. Honestly.

There’s a massive gluten-free community out there — online, in support groups, at food festivals (come to one, they’re brilliant) — and right here at The GF Table. You’ve got questions? We’ve probably asked them too. You’ve got horror stories? So do we. You’ve made an accidental gluten-free masterpiece out of weird leftovers? You’re one of us now.

Note to Past Me (and You): There’s a whole community of us out here, squinting at packets and swapping tips. Come sit with us — we’ve got safe snacks.


Final Thought

Your first gluten-free month might feel like a whirlwind of frustration, tiny wins, and reading labels in 6-point font under the harsh glare of supermarket lighting.

But I promise — you won’t always feel this lost. You’ll get braver, more confident, and maybe even a little bit smug when you whip out your own bread roll at a BBQ like a seasoned pro.

It gets better. It gets doable. And you’ve absolutely got this.

Happy Coeliac Awareness Month — here’s to label-reading victories, safe snacks, and feeling just a little bit smug with your own bread roll.

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6 responses to “Newly Diagnosed? Here’s What I Wish I’d Known in Month One”

  1. Anonymous

    I’m loving this column Ben. It is clearly based on your experience. I used to buy grated cheese for my late husband, he liked cheese on crumpets and it made it easy for him to do his own snacks. Rice or potato starch is usually used to stop grated cheese clumping, but always always read the label! Just in case! Japanese soy sauce, Tamari, is safe as it doesn’t contain wheat. I have also found that when eating out, a Japanese restaurant can be a safe option.

    1. Thank you so much. Glad you like the blogs.

  2. Anonymous

    thank you so much for this great piece of information.

  3. A great blog! I will pass it on to my sons who are also sufferers.

  4. It’s been two years (it might even be exactly today in 2023) since I got my diagnosis. I remember feeling so relieved to finally know what was wrong with me. At first, it didn’t seem so bad. Then I started googling… and reality hit. 😅 Then the grief. But, I agree, it does get better. We persevere! 💪🏼😄

  5. Cushla

    Love this! Such a great snapshot of what its like to be first diagnosed. Can be emotional, overwhelming, but maybe for some – a sense of relief knowing that their body can now heal with a GF diet.

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